BUSSOLA DELLE STELLE
Orienting yourself, so you don’t lose your bearings.
A community founded in 2021, dedicated to caregivers and family members of those affected by complex epileptic encephalopathies.
The compass for a journey that changes every day
Complex epileptic encephalopathies, very rare diseases that affect children, are unpredictable with incredibly debilitating side effects. Like it is for all individuals dealing with any disease, it is important for these caregivers to have something to guide them.
The key of Bussola delle Stelle is to put patients and caregivers at the center through the means of digital tools. A compass is an instrument that allows individuals to orient themselves and find their path, especially when they feel lost.
Weathering the storms.
We concentrated on the human side of the disease, and on sharing the tips and tricks learned already by families to increase their quality of life. We retold the stories of patients and those living with them, sharing their experiences as if they were written in a diary.
For this reason, our creation was told not from the perspectives of clinicians, caregivers, or bystanders, but instead from an imaginary patient: Diego. Diego, the main character of our story, focused on the fundamental aspects of the lives of caregivers and the afflicted by bridging metaphors and reality.
